The Mendus Narcolepsy Questionnaire
This survey was created by
and is intended as a first step for individuals who wish to participate in our ongoing research efforts with narcolepsy. The survey includes several widely used clinical instruments used to assess symptoms of narcolepsy. We have also added questions concerning your basic demographic info, potential disability, treatments you've tried and other disorders you suffer from.
To begin enter your
member ID in the first field. To get a member ID click here:
The total time to complete the survey will vary but 15min would be a safe estimate. Mendus members will be able to see their results on the website a day or so after completing the questionnaire. The original instruments upon which ours has been built can be found at the following links. Intellectual credit belongs to the original authors.
The Epworth Sleepiness Scale
The Ullanlinna Narcolepsy Scale
: Hublin C, Kaprio J, Partinen M, Koskenvuo M, Heikkilä K. The Ullanlinna Narcolepsy Scale: validation of a measure of symptoms in the narcoleptic syndrome. J Sleep Res. 1994 Mar;3(1):52-59
Let's get started...
Please enter your Mendus member ID?
What country do you live in?
What is your height?
What is your weight?
What is your date of birth (dd/mm/yyyy)?
What is your gender?
< your choices >
Prefer not to answer
Have you been officially diagnosed with narcolepsy? It is okay if you do not have an official diagnosis. It will not influence your involvement in Mendus projects in any way.
If yes, what year were you diagnosed?
Who diagnosed you with narcolepsy?
None, I don't have narcolepsy
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